{"id":2292,"date":"2011-12-12T00:49:30","date_gmt":"2011-12-12T08:49:30","guid":{"rendered":"http:\/\/thisnest.com\/?p=2292"},"modified":"2011-12-18T13:50:04","modified_gmt":"2011-12-18T21:50:04","slug":"thirteen-weeks-into-treatment-childhood-nephrotic-syndrome","status":"publish","type":"post","link":"http:\/\/thisnest.com\/?p=2292","title":{"rendered":"Thirteen Weeks Into Treatment, Childhood Nephrotic Syndrome"},"content":{"rendered":"<p id=\"top\" \/><div id='gallery-1' class='gallery galleryid-2292 gallery-columns-3 gallery-size-thumbnail'><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon landscape'>\n\t\t\t\t<a href='http:\/\/thisnest.com\/?attachment_id=2293'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"http:\/\/thisnest.com\/wp-content\/uploads\/2011\/12\/300684_10150292291484448_562654447_7577862_2491965_n-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" aria-describedby=\"gallery-1-2293\" \/><\/a>\n\t\t\t<\/dt>\n\t\t\t\t<dd class='wp-caption-text gallery-caption' id='gallery-1-2293'>\n\t\t\t\tD&#8217;Lo At The Time of Diagnosis\n\t\t\t\t<\/dd><\/dl><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon portrait'>\n\t\t\t\t<a href='http:\/\/thisnest.com\/?attachment_id=2294'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"http:\/\/thisnest.com\/wp-content\/uploads\/2011\/12\/DSCF5879-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" aria-describedby=\"gallery-1-2294\" \/><\/a>\n\t\t\t<\/dt>\n\t\t\t\t<dd class='wp-caption-text gallery-caption' id='gallery-1-2294'>\n\t\t\t\tD&#8217;Lo After Three Months of Treatment\n\t\t\t\t<\/dd><\/dl><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon landscape'>\n\t\t\t\t<a href='http:\/\/thisnest.com\/?attachment_id=2297'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"http:\/\/thisnest.com\/wp-content\/uploads\/2011\/12\/041-4-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" aria-describedby=\"gallery-1-2297\" \/><\/a>\n\t\t\t<\/dt>\n\t\t\t\t<dd class='wp-caption-text gallery-caption' id='gallery-1-2297'>\n\t\t\t\tD&#8217;Lo Before Nephrotic Syndrome\/MCD\n\t\t\t\t<\/dd><\/dl><br style=\"clear: both\" \/>\n\t\t<\/div>\n<br \/>\nI cannot believe this time has passed so quickly! Standing at the beginning of the race, the finish line seemed so far away. Now, just two weeks before Christmas, D&#8217;Lo is already thirteen weeks into treatment for his kidney disease. While I know that the true finish line lies somewhere between his teen and adult years (God willing), the first leg of this marathon is nearly behind us. <\/p>\n<p>We are past the six weeks of high-dose prednisone. We are past the following six weeks of half-dose prednisone. The pediatric Nephrologist says his urine still looks great and, although she warned me that he will most likely relapse if &#8211; or should I say when &#8211; he ever gets sick, she is pleased with his progress so far. That&#8217;s some news that I&#8217;m not quite sure how to absorb. Of course I&#8217;m beyond grateful that his constant uplifting by all of you Prayer Warriors has been effective&#8230;but I&#8217;m also trying to figure out how to keep a four-year-old, living in a house with his family of seven, from catching even a cold. <\/p>\n<p><strong>While I know that <em>nothing<\/em> is too great for my God<\/strong>&#8230;I also know that I have to get all the Sparrows from This Nest up to the clinic for our flu shots!<\/p>\n<p>The next phase of his treatment involves the slow weaning of his tiny body off of the steriods. It took three months to get through the high and half-dosing&#8230;and it will take that same amount of time to take him all the way down to a medicine-free existence. He will take a little less each week until, one day, he will be free from the nasty syrups that literally make him shiver in disgust as squeezes the syringe-full into his own mouth (he&#8217;s a little independent but, don&#8217;t worry, I do all the measuring).<\/p>\n<p>During the same period of time, I expect to see (and have already begun to see) the reversal of the drug&#8217;s side effects. His very swollen face, his huskier frame, his increasingly hairy body and face, his sleeplessness. I have to admit though &#8211; we&#8217;ve sort of become attached to his chipmunk cheeks! I will miss those.<\/p>\n<p><strong>I want to thank everyone who speaks to our Father on our little boy&#8217;s behalf<\/strong>. Everyone who has been concerned about the kidneys of a cute, little boy named D&#8217;Lo &#8211; even though many of you don&#8217;t even know him outside of the posts I share. All of you who have hit your knees for our son,<em> I love and appreciate each of you<\/em>! <\/p>\n<p>Please continue to remember our maniac midget because, as I mentioned, we are only at the end of the beginnining. This won&#8217;t be a sprint&#8230;it is, indeed, a marathon.<\/p>\n<p>Be blessed.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I cannot believe this time has passed so quickly! Standing at the beginning of the race, the finish line seemed so far away. Now, just two weeks before Christmas, D&#8217;Lo is already thirteen weeks into treatment for his kidney disease. &hellip; <a href=\"http:\/\/thisnest.com\/?p=2292\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20],"tags":[40,55],"class_list":["post-2292","post","type-post","status-publish","format-standard","hentry","category-childhood-nephrotic-syndromemcd","tag-childhood","tag-health"],"_links":{"self":[{"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/posts\/2292","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/thisnest.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2292"}],"version-history":[{"count":5,"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/posts\/2292\/revisions"}],"predecessor-version":[{"id":2324,"href":"http:\/\/thisnest.com\/index.php?rest_route=\/wp\/v2\/posts\/2292\/revisions\/2324"}],"wp:attachment":[{"href":"http:\/\/thisnest.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2292"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/thisnest.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2292"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/thisnest.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2292"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}