I (we) got something in the mail this weekend. There really isn’t any way to describe how I felt upon reading it. My husband opened it first, but he couldn’t read it…he simply handed it to me and walked away from it. As if he could walk away from it – he wishes.
Strange. Sad. Discouraged. Encouraged? Again, don’t really know how to describe how it made me feel. It was just an invitation, afterall. And I know that D’Lo has a kidney disease. And I know that D’Lo is on this prednisone roller coaster. And I know that we have to watch his urine and his symptoms. And I know that D’Lo has been to the doctor more than a lot of kids his age…but still, this invitation seemed more like a huge reality check/punch to the gut.
“A Special Day for All Kidney Patients & Their Families”
Please join NW Kidney Kids for KIDS DAY, Sponsored by Kids Day of Oregon, blah, blah, Free Fun for the Whole Family, blah, Lunch, Fishing Tournament, blah, blah, Ice Cream, Arts & Crafts, blah, Games, blah, Prizes, blah, blah…
Uncomfortable – that’s the word I’m searching for. Crazy how, in the middle of all that fun-sounding stuff, all I could feel was the discomfort of the blah, blah, blah. It is what it is, and it could be worse. I know that. I just love this little guy so dang much…and I want him to be the indestructible superhero that he thinks he is.
He is. He is my superhero. He is strong and loud, and loaded with energy…certainly enough for A Special Day for All Kidney Patients & Their Families. I think we may just go.
I think you should go! I’m glad you can go, with your Kidney Kid and his sisters and brothers. We could have lost our Kidney Kid, but we didn’t. We have him, and I hope we always have him. OUR big, strong Kidney Kid! I love him.