Category Archives: CHILDHOOD NEPHROTIC SYNDROME/MCD

In 2011, and completely unrelated to his Kawasaki Disease, our precious D’Lo was diagnosed with a rare kidney disease known as Minimal Change Disease. Follow his progress as he continues to be such a little warrior!

“Looks Great!!”

Posted on August 17, 2013 by thisnest

“Looks Great!!” Even though my three terms in Anatomy & Physiology have offered me some insight into what all these numbers mean, and even though two years of watching our precious D’Lo battle this have given us experience reading these … Continue reading →

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Prednisone Trap

Posted on July 30, 2012 by thisnest

We saw D’Lo’s new Pediatric Nephrologist today. Good news? No. Bad news? Not really. It was more like the same news…just wrapped up in a different package. We will stay on the prednisone for now – and wait a little … Continue reading →

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Praying for Magic

Posted on July 16, 2012 by thisnest

I’ve said it before and I’ll say it again: He is strong, so strong. He is a strong soldier – fighting a battle he’s hardly even aware of. He has to take his medicine again – that’s all he really … Continue reading →

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Rosebuds Through Rocks

Posted on July 11, 2012 by thisnest

Life isn’t always a rose-petal path. The journey just isn’t soft and fragrant the entire way. You have stretches where the warm sands of tranquility soothe your feet, and then you have the miles in between – where your feet … Continue reading →

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My Super-Hero

Posted on May 7, 2012 by thisnest

I (we) got something in the mail this weekend. There really isn’t any way to describe how I felt upon reading it. My husband opened it first, but he couldn’t read it…he simply handed it to me and walked away … Continue reading →

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