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Goodnight Prayer

D’Lo recites his little prayer, hands clasped, every night…and God listens. How could He not? What a precious boy.
Now I lay me down to sleep.
I pray the Lord my soul to keep.
Safely guide me through the night,
And wake me with the morning light.
Please bless us.
Please protect us.
In Jesus’ name…Amen.
Goodnight Bubba, Mommy loves you so much…
Posted in MY THOUGHTS AND PRAYERS
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A Series Of Unfortunate Events
Hmmmm, where to start? The better question may be in regard to the end…not the beginning. As in, when will this series of unfortunate events finally be over? The crazy thing is, I was just giving advice to a friend regarding the way bad things always come in a row, when it rains, it pours and all that. I told her to take a deep, cleansing breath and try to change her mindset, because when you constantly anticipate the next bad thing, well, it will surely come. Then? Boom!
My day began…
The second day of our weekend full of home-improvement projects and, although I first had to make breakfast for my hungry tribe (pancakes and sausage), I also had to go pick up Dee Dee from her friend’s house that she spent the night at, and then get back to Lowe’s for the handful of things I inevitably forgot when I went yesterday. I have a real love/hate relationship with that store (but that’s a whole other post). Next, on to another store (one that sells diapers), and then to blockbuster…still no Spooky Buddies, D’Lo will not be happy.
I know, I know…just running errands. What’s so bad about that?
Got home, unloaded our supplies, and got busy. Cleaning, painting, feeding these people (again). Crap! I forgot D’Lo’s medicine! Have to get AD to sleep for naptime as well. He wants a booby (his words, not mine) but I’m trying to wean him. He is 2 1/3 years old afterall (but that’s a whole other post too).
Sorry, off track…back to the point.
Just as I’m finally getting a few more hours into repairing and painting the walls that simply cannot survive a house full of children, in walks Destiny with a very unsure look on her face. Turns out she has some kind of rash that she has neglected to previously show me…and it’s been getting worse for about three days now. My choices are to take advantage of the last hours of the weekend to finish the several jobs I have started in my home – or take my child in to make sure this isn’t chicken pox. Hmmmmm, what to do?
I wash my face, pull my hair back, and change out of my funky, work clothes. I throw the chicken in the oven to roast for the hour I think I’ll be gone. Dee Dee (Destiny) and I head out to Urgent Care. We took Tony’s car because it uses less gas (and because it’s a 300C)…but it’s out of gas, so we stop. We spend about five minutes at the gas station, only to arrive at Urgent Care five minutes after they close! What?! They won’t see her. Pooey! That’s fine, I’ll just have to take her to the emergency room. We get back in the car, turn the key…
Are you kidding me right now?! The car won’t start! I call my husband, he gets on his way in my suburban. He then has the nerve to call me back on my cell, barking about how he’s not going to make it. The suburban is out of gas, he’s running on fumes, and his wallet is where? In the 300C, with me. AAA is not going to be happy with us when they get called out for both of our vehicles!…And hold up! How are you gonna get upset with me about gas when it was the five minutes I spent putting gas in your car that made us too late to be seen at Urgent Care?! Again I say – What?!
Okay, he makes it. We try to jump start the car (Dee Dee’s still sitting in it with a rash)…no luck. My sister runs Dee Dee and me to the hospital and we leave both vehicles with Tony. At the emergency room, they put us into quarantine. On a good note, she doesn’t have chicken pox (Oh man, speaking of chicken…I left one in the oven to roast two hours ago!), she does have its cousin, however. A viral rash (yes, contagious) with no treatment. She’ll get better on her own, although it could take up to eight weeks. All I can think about is D’Lo and his compromised immune system, and how this could affect him. Well that, and the fact that Dee Dee now has to miss the last two games of her volleyball season. She’s upset. Tony picks us up in the suburban, and we head to the Chrysler dealership to meet the tow truck and our car. We’ll have to leave it there overnight and hope for good news in the morning.
Whew! This is a long post…but it’s not over.
I call Devaney to tell her to start peeling the potatos to go with our very well done chicken. What I forget to tell her is not to put the peelings down the disposal. What the H – E – double hockey sticks? Might as well throw a now-broken garbage disposal onto the bottom of our list of home-improvement projects. You know the list that I barely made it halfway through even though we’ve been working all weekend?
I gotta say…I don’t think I’ve ever looked forward to a Monday as much as I’m looking forward to tomorrow. I will take my own advice on the deep, cleansing breath and change of mindset thing…but I’m just too tired to do that tonight…
I don’t even have a picture for this post 🙁
Posted in FAMILY
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Five Weeks Into Treatment, Childhood Nephrotic Syndrome
Well, we are five weeks into treatment already! D’Lo is truly a champ…our little soldier! For those of you who don’t know D’Lo, you probably just see the cute, round face of a four year old. For those that do know him, you can clearly recognize the effects the steriod treatments are having on his appearance. He is much bigger, head to toe, but particularly his cheeks and torso. As much difficulty as I am having adjusting to his new look…I know it will be equally strange once he’s done with the prednisone and begins to shrink again, which is what the doctor said will happen.
The other side effects also still have a firm grip on our baby boy…insomnia (which means I don’t sleep either), moodiness (the good is great, but the bad is terrible), and he’s constantly hungry (which I know is also contributing to his new body type).
The saddest part for me, I think, is his inability to acclimate to his new size and center of gravity, at the same rate in which he is changing. Ever since he could stand on his own two feet, he has been a very active climber, jumper, and risk-taker. Now there is more weight to carry with him and his motions not only don’t feel the same, they don’t always have the same results – as evidenced by the horrific look on his face when he gets the wind severely knocked out of him as he tries to land a jump. It is pitiful.
The trade off? Of course, it’s worth it. His urine looks great, no protien leaking. His face may be bigger but his eyes are not swollen. He is still doing great in his recovery. His immune system is compromised as a result of the steroids but as long as we can keep him from getting sick, he will be considered in remission and a “normal” kid.
I am thankful for a great pediatrician, and thankful for constant access to a pediatric nephrologist…mostly though, my appreciation is for the Merciful God that daily allows little arms around my neck and children’s laughter in my ear…
Keep the prayers coming, Warriors!
No Thanks, Not Hungry!

AD sat there, contently and committedly digging in his nose. Knuckle deep and on a mission, he finally found what he was looking for. He pulled it out, looked at it, looked at me, eyes sparkling with anticipation of his own silliness and demanded…
“EAT IT!”
Posted in SIMPLY STATED
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