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I’ve said it before and I’ll say it again: He is strong, so strong. He is a strong soldier – fighting a battle he’s hardly even aware of. He has to take his medicine again – that’s all he really knows. He has to take that stuff twice a day…and pee on a little stick once a day. Other than that, he plays the day away with the strength, energy, and imagination of a four year old boy with no worries. I love him so much.
His pediatrician has him back on a high dose of prednisone. Once he pees three clean sticks in a row (that would indicate that his kidneys aren’t leaking his much needed bodily protein out through his urine), we will begin tapering the dosage. Down a little, down a little, down a little – same old routine. Problem is, the fact that he keeps relapsing as soon as he comes off the steroids is revealing to his Nephrologist that he is prednisone dependent – not a good thing. So, as we progress with the tapering down of the steroid dosage, we will meet with the Pediatric Nephrologist in August to begin discussing a kidney biopsy and alternate plans for treatment.
In the meantime, I will watch him being a normal little boy…who happens to have to take a lot of medicine. I will watch his daily transformation from D’Lo to Spiderman to ninja warrior to budding artist to zombie to olympic sprinter and back to D’Lo again. I will witness all the magic that exists in the daily life of a four year old…and I will pray and pray for a lifetime of magic to come.
Sending every ounce of positive light and love to you, D’Lo, and the rest of your family I can. Hang in there, Donna.